There is a comprehensive review of DeNovo HSP SPG4 available on the Lilly and Blair Foundation website. Written by a lay-person, it details the disease and the steps being made to find a cure. Only 20 pages long it is well worth the time. Visit The Lilly and Blair Foundation to download a copy.
SPG 4 Denovo
“Navigating De Novo SPG4 Together.”
SPG 4 Denovo 
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