Research & Updates
Updates and News
How Rare Disease Families Need to Start Rethinking How Cures Get Built For a long time, rare disease advocacy has followed a simple instinct…
- February 24, 2026
The Unfiltered Truth About Our Life With Grace I don’t think anyone really understands what our life is like. Not family. Not friends. Not doctors. Not even..
- January 26, 2026
When it comes to treating spasticity in SPG4, it’s not just about any physical therapy. It’s about a highly specific approach that focuses on opposing…
- September 10, 2025